On February 29th, 2016, we attended Rare Disease Day at the State Capitol building in Sacramento, CA with other rare disease advocates to raise awareness of rare diseases and advocate for legislation by targeting the general public, policy makers, public authorities, industry representatives, researchers, and health professionals. In partnership with
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Archive for February, 2016
Janis Sherwood Joins our Board of Directors
It is with great pleasure that we welcome Janis Sherwood to our Board of Directors. Janis lost her son Sawyer to ALD back in 2003 and since then has been traveling thousands of miles throughout the country in a retrofitted 1981-model RV raising awareness of ALD to help other parents avoid the same