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Newborn Screening

“Aidan’s Law” Petition for National ALD Newborn Screening Reaches 50,000 Signatures

Elisa Seeger (pictured above) and The Aidan Jack Seeger Foundation reached a milestone this week when their petition on received 50,000 signatures supporting “Aidan’s Law” (S. 2641 & H.R. 4692) to enact adrenoleukodystrophy (ALD) newborn screening nationwide. The bill would require newborn screening of ALD in all 50 US States. Please sign and share this petition!

The Aidan Jack Seeger Foundation was established to address the need for information and newborn screening with respect to Adrenoleukodystrophy. In addition, they strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of the disease.

Aidan’s Story

Aidan Jack Seeger was a happy, healthy, spirited boy who, at age 6, suddenly developed vision and concentration problems. After many misdiagnoses, doctors figured out that Aidan had ‪‎adrenoleukodystrophy (ALD). Eleven months later, he was gone. If the disease had been caught early, Aidan could still be alive and well today. Read more…


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