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Newborn Screening Family Education Survey

This survey is being conducted by Expecting Health, a non-profit organization focused on engaging families and health professionals in pregnancy and newborn health:

If you agree to participate, you will be presented with an online survey. The goal of this survey is to learn about families’ needs and priorities around newborn screening information. The questions will ask you about your:

  1. Familiarity with different topics around newborn screening;
  2. Preferences on how to receive health information; and,
  3. Newborn screening education needs.

This survey takes approximately 20 minutes to complete. You may opt-out of any question. In appreciation of your time, you can be entered to win a $75 gift card. One participant will be selected by 6/15/2019.

If you are interested in the survey results, a summary will be posted on our website,, by September 2019. You may also sign up for our email newsletter and read other useful health information on our site. If you have questions about this survey, you may contact Natasha Bonhomme, at (202)-966-5557.


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