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Newborn Screening Family Education Survey

This survey is being conducted by Expecting Health, a non-profit organization focused on engaging families and health professionals in pregnancy and newborn health: If you agree to participate, you will be presented with an online survey. The goal of this survey is to learn about families’ needs and priorities

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“Women with ALD” Webinar By Dr. Marc Engelen

Dr. Marc Engelen, Pediatric Neurologist at the Academic Medical Center of Amsterdam, gave a webinar presentation last month titled, “Women with ALD.” This was the 11th installment of ALD Connect’s Webinar Series. To see more webinars from ALD Connect, click here. For more information, visit

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